Tag Archives: ALS

Half Marathon Runners Go 13-Miles To Cure ALS

By Libby Smith GREENWOOD VILLAGE, Colo (CBS4) – At the Transamerica Rock ‘n’ Roll Denver Half Marathon, about 14,000 runners will pound the pavement for 13.1 miles. Every one of them has a story about why they run. One Denver team will be out there to find a cure for Amyotrophic Lateral Sclerosis (ALS). “Our goal at Greenwood Athletic and Tennis Club is to get people moving. This disease takes away someone’s ability to move, so it goes against everything we stand for,” said Paula Neubert, President and General Manager of the club.
team als 1 Half Marathon Runners Go 13 Miles To Cure ALS

(credit CBS)

About 33 employees and club members have joined GreenwoodTeamQuest4ALS. The money they raise goes to a national movement to find a cure for the neurodegenerative disease, called Augie’s Quest. “It’s an incurable disease, and we just need more money to find that cure,” Neubert added. LINK: Donate to GreenwoodTeamQuest4ALS “I cannot imagine someone telling me that I will no longer have the ability to run, so it’s something that really touched me,” said Sheri Warren, Director of Sales and Retention at the club and a runner with GreenwoodTeamQuest4ALS. Warren has a personal connection to the cause. Her aunt, Elaine, lost her battle with the disease. “It was amazing to me how quickly the change happened, and it was incredibly sad,” Warren explained.
team als 2 Half Marathon Runners Go 13 Miles To Cure ALS

(credit CBS)

The heartbreaking stories of those diagnosed with this tragic disease is what keeps this team motivated. “And you go, ‘I can go one step further. I can actually do that, so why not keep going? Why not push harder? Why not challenge myself to even remotely come close to the things that they are challenged with every single day?’” Neubert told CBS4. By the time they reach the finish line, GreenwoodTeamQuest4ALS hopes to have raised $100,000 dollars to find that cure. Libby Smith is a Special Projects Producer at CBS4. If you have a story you’d like to tell CBS4 about, call 303-863-TIPS (8477) or visit the News Tips section.

49ers Greats Team Up To Assist Dwight Clark In His Battle Against ALS

SANTA CLARA (CBS) — In March, in a letter, one of the most beloved football players in the Bay Area announced some sad news: former San Francisco 49ers wide receiver Dwight Clark informed fans and the public that he had been diagnosed with amyotrophic lateral sclerosis — ALS for short. Now some of his famous teammates are asking his fans to come out and join forces to help their good buddy, as well as others suffering from this tough, challenging condition. KPIX 5 spoke to former 49ers teammates and Super Bowl champs Ronnie Lott and Roger Craig at the Rosewood Sand Hill, in Menlo Park, not too far away from Levi’s Stadium. You don’t get much tougher than these guys. Even so, the news about their good friend Dwight Clark hit them especially hard. “First of all it takes your breath away,” said Lott. “He called me and told me he had ALS and I cried like a baby. I’m still tearing up, you know?” said Craig. One of the all-time football greats, Clark played on two Super Bowl championship teams. Now, he’s up against a terribly cruel opponent: ALS. Read more at CBSSanFrancisco.com.

49ers Greats Team Up to Assist Dwight Clark In His Battle Against ALS

SANTA CLARA (KPIX) — In March, in a letter, one of the most beloved football players in the Bay Area announced some sad news: former San Francisco 49ers wide receiver Dwight Clark informed fans and the public that he had been diagnosed with amyotrophic lateral sclerosis — ALS for short. Now some of his famous teammates are asking his fans to come out and join forces to help their good buddy, as well as others suffering from this tough, challenging condition. KPIX 5 spoke to former 49ers teammates and Super Bowl champs Ronnie Lott and Roger Craig at the Rosewood Sand Hill, in Menlo Park, not too far away from Levi’s Stadium. You don’t get much tougher than these guys. Even so, the news about their good friend Dwight Clark hit them especially hard. “First of all it takes your breath away,” said Lott. “He called me and told me he had ALS and I cried like a baby. I’m still tearing up, you know?” said Craig. One of the all-time football greats, Clark played on two Super Bowl championship teams. Now, he’s up against a terribly cruel opponent: ALS. “At present there is no cure,” explained Stanford Medical Center neurologist and ALS expert Dr. John Day. Dr. Day said that, with this disease, patients lose the ability to move but not the ability to think. “Most people with ALS will die from the disease within 3 to five years of their first symptoms ,” said Doctor Day. Ten percent, however, will live more than ten years. Clark’s teammates — even his old boss, Eddie DeBartolo — like those odds. “We’ve got his back I’m telling you. Mr. DeBartolo, Ronnie Lott, Joe Montana, Jerry Rice, we all support him,” exclaimed Craig. The former running back added “we just want him to know that we love him so much.” A long time runner, for the past 13 years, Craig has hosted the San Jose Rock ‘n’ Roll Marathon. This time, he’s running to raise money for the ALS Association and Dwight Clark. And you’re invited. “It would be awesome for you guys to donate and to help to support this guy,” said Craig. He is hoping to raise at least $87,000 to honor No. 87. “Eighty-seven (dollars) for eighty-seven,” laughed Craig. Experts say it’s unclear if or how playing football contributes to ALS. One study published in 2012 by the National Institute for Occupational Safety and Health (NIOSH) suggested how pro football players have a greater risk of dying from ALS, as well Alzheimer’s and Parkinson’s disease. Dr. Day believes better funding and more research may unravel the mystery, lead to better therapies and perhaps even conquer this deadly killer. “I’m in awe and very grateful for the work that Roger Craig is doing to help move this forward to help Dwight Clark and to help others with ALS so we can begin to understand this disease better and do more to support people with the disease,” said the Stanford neurologist. Clark’s leaping reception in the end zone of Joe Montana’s winning touchdown pass in the 1981 NFC championship game against the Cowboys — forever remembered as “The Catch” — has been enshrined at the 49ers museum in Santa Clara, where a life-size statue of Clark stands above all others. “He stretched to get that ball. And, when you think about stretching your life, and as he’s doing right now, trying to stretch his life for every breath, every moment, all we’re asking is that you stretch yourself too in thanking him,” said Hall of Famer Lott. Lott added: “We want Dwight to keep fighting. We want everyone to understand there is no quit in all of us.” The San Jose Rock ‘n’ Roll Marathon takes place Oct. 7 and 8. If you want to lace up your running shoes for Team Challenge ALS, here’s the link: http://bit.ly/2x14Lho Roger Craig is running the 13.1-mile marathon on Oct. 8. If you aren’t able to join him for the run and the fun, you can donate directly to: http://bit.ly/2fvPoai Dwight Clark is planning on attending the event. WEB LINKS: Dwight Clark’s letter announcing his ALS diagnosis http://debartoloholdings.com/dwightclark.html ALS Association: http://www.alsa.org Rosewood Silicon Valley https://www.rosewoodhotels.com/en/sand-hill-menlo-park Roger Craig http://rogercraig33.com San Jose Rock ‘n’ Roll Marathon http://www.runrocknroll.com/san-jose NIOSH study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4098841 49ers Museum http://www.levisstadium.com/Museum

First New Drug In Decades Gives Hope To ALS Patients

SACRAMENTO (CBS13) — For the first time in more than 20 years, a new drug to treat ALS is now available in the United States.

The drug Radicava was approved by the FDA and has proved to be effective for ALS patients.

“I’m really excited that there’s some hope,” said Diane Freeman.

A powerful wave of hope is moving through the ALS community.

“I told my doctors I want to be the guinea pig, I want to get it now,” said Freeman.

Sixty-four-year-old Diane Freeman of Sacramento is a mother of two and a retired fourth-grade teacher who was diagnosed with ALS– also known as Lou Gehrig’s disease, just a year ago. She says her arms and legs are getting weaker and weaker.

“It’s tough, especially as it progresses more, but I’m fortunate, I can still speak and breathe on my own and swallow,” she said.

Every 90 minutes, a new patient is diagnosed with ALS, and someone dies from the disease.

Now Radicava, an infusion therapy developed out of a study in Japan, is the first drug in 2 decades to hit the U.S.

“This is really significant. This drug took us out of a slumber and showed us there are potential cures out there,” said Dr. Jonathan Katz.

Dr. Katz is a neurologist and director of the Forbes Norris ALS Center based in San Francisco and Sacramento. Dr. Katz says Radicava has shown promising signs in Japan – slowing the progression of ALS by 33 percent.

“The patients in the treatment group that received Radicava had much slower progression, than those that received placebo. And when we add it to the old drug we had, it gives us real progress for this disease,” said Dr. Katz.

Trials were done on patients in the earliest stages, but the hope is anyone living with the disease can take it.

“The new drug is an infusion, the patients have to get 10 IV infusions per month,” he said.

For ALS patients like Freeman, Radicava means more time– and more life.

“I want to hold my future grandkids someday, I want to go on vacation with my kids, so this drug gives me hope,” said Freeman.

Dr. Katz says since this drug has become available, many doctors have been writing prescriptions.

“There are 5-6 other drugs that will be studied, and we hope a couple of those will be effective. And you start adding things up, and you really have an impact,” he said.

Katz says patients should be patient, as a lot still needs to be worked out. As far as cost– he’s hoping insurance companies will get on board and cover this infusion therapy.

49ers Legend Clark Says He Has ALS, Suspects Football A Cause

49ers Legend Clark Says He Has ALS, Suspects Football A Cause

SAN FRANCISCO (AP) — Dwight Clark says he has Lou Gehrig’s disease and suspects playing football might have caused the illness.

Clark announced Sunday on Twitter that he has amyotrophic lateral sclerosis, a disease that attacks cells that control muscles.

I wanted to share some unfortunate news: I have ALS. https://t.co/RqU0fFT98g

— Dwight Clark (@DwightC87) March 20, 2017

The former San…

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49ers Legend Clark Says He Has ALS, Suspects Football A Cause

49ers Legend Clark Says He Has ALS, Suspects Football A Cause

SAN FRANCISCO (AP) — Dwight Clark says he has Lou Gehrig’s disease and suspects playing football might have caused the illness.

Clark announced Sunday on Twitter that he has amyotrophic lateral sclerosis, a disease that attacks cells that control muscles.

I wanted to share some unfortunate news: I have ALS. https://t.co/RqU0fFT98g

— Dwight Clark (@DwightC87) March 20, 2017

The former San…

View On WordPress

49ers Legend Clark Says He Has ALS, Suspects Football A Cause

49ers Legend Clark Says He Has ALS, Suspects Football A Cause

SAN FRANCISCO (AP) — Dwight Clark says he has Lou Gehrig’s disease and suspects playing football might have caused the illness.

Clark announced Sunday on Twitter that he has amyotrophic lateral sclerosis, a disease that attacks cells that control muscles.

I wanted to share some unfortunate news: I have ALS. https://t.co/RqU0fFT98g

— Dwight Clark (@DwightC87) March 20, 2017

The former San…

View On WordPress